There's progress on Reilly's forever home. The first of two concrete pours is in the books, awaiting the final pour and then onward to the pavers! Check out the photos of the new driveways! 

​In this month of love, we asked Reilly what he loves: 

-His family and friends 

-Hammy, his pet hamster 🐹 

-Using his iPad to play Minecraft, Pokemon, and Plants vs Zombies

 -Photobombing 

-Texting mosquito🦟 and snake 🐍 emojis to his Mom 

​Reilly is doing great in school and is often a comic relief to those around him. Right now he doesn’t leave the classroom at lunch, but his teacher has created a “lunch bunch” group which consist of four randomly picked students to eat lunch with Reilly. It’s great to see him and the other kids engaging.

His back continues to look great since we’ve taken things slow and cautious. Unfortunately, due to his bladder management, he’s limited on how long he can stay at school. We will be doing a Urodynamic test with his doctor soon to see if he would benefit from an additional GTube that would go directly into his bladder and drain into a bag. Yes, another invasive surgery, but this is inevitable and the benefits far outweigh our current situation.

Reilly's checking out all the progress on his forever home and loves the results so far.

Check out the latest photos of Reilly’s forever home! The stucco is in the works and the drywall is up!

​The windows are in and the shingles are on! Reilly's house is coming along! Check out the progress

​From Tammy, Reilly’s Mom

​Reilly’s doing great in school and the kids seem to be very accepting, friendly, and excited when he’s around. He’s still not able to complete a full day of school yet, but he’s getting there and so far his back looks great.

​Rough plumbing and electrical are mostly complete. In addition, the windows are installed. It is moving along and Reilly and his family are so excited to see the progress!

​Being full time caretakers for our son (in addition to working full time jobs) is something that we are grateful for in that we received the necessary training and support from medical staff, family, and friends to get from where we were to where we are today. While exhausting in the extreme, we can provide our son with needed medical care on a daily basis as well as be there for him in ways that only a parent can be – reassuring him that all of the scary things that are happening are actually good (trach care, physical therapy, new wheelchairs, etc.), customizing his equipment and daily routines to better fit his daily schedules, the list is endless.