I think the one thing that we can all agree on is that no one said a spinal cord injury and the challenges that come along with it would be easy.
Reilly was named after my family surname. The name means “courageous” or “valiant” and he’s certainly one of the bravest people I know. The kid continues to get hurdles thrown at him and he handles them like a champ with a smile on his face. This summer seemed more like a mountain rather than a hurdle, but we might be a bit biased.
He’s overcome everything from pressure sore issues, to recurring UTI’s, to medication reactions, and lastly he stopped breathing temporarily on his portable vent twice. We’ve worked through the summer trying to resolve all these issues before the start of the new school year. He started 3rd Grade with a big smile and excited to see his friends. Unfortunately, that only lasted a little over a week before we had a new pressure sore that’s left him unable to attend school for the near future. His school and teacher have been great working with us on how to bridge this time until he can return in person.
We continue to problem-solve in an effort to find the best quality of life and independence for Reilly. Kyle and I will continue to search and brainstorm for solutions.
One thing I’m certain of is that we will NEVER stop because he deserves nothing less from us.
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