Being full time caretakers for our son (in addition to working full time jobs) is something that we are grateful for in that we received the necessary training and support from medical staff, family, and friends to get from where we were to where we are today. While exhausting in the extreme, we can provide our son with needed medical care on a daily basis as well as be there for him in ways that only a parent can be – reassuring him that all of the scary things that are happening are actually good (trach care, physical therapy, new wheelchairs, etc.), customizing his equipment and daily routines to better fit his daily schedules, the list is endless.
Reilly’s forever home is coming along nicely! Roofing has started as well as the interior rough plumbing and electrical.
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